I was recently contact by Novartis to see if I was interested in communicating more with them on being a patient advocate and identifying what (we) patients need. I will keep you updated as to what happens with this new exciting opportunity!
I received an email from them last week with some resources they (Novartis) has developed to help educate patients about NET. I wanted to share this with you.
The first is NET Alliance
The second is Carcinoid.com, it even has a "symptom assessor", which I think is fabulous!
Check out these two great resources for NET cancer patients and their caregivers.
A quick update on me: I'm still doing well, however, the last few weeks I've been very nauseated. It comes and goes but has been a companion of sorts everyday. I have no idea whats up. I do have an appointment with my GP this week so I'll ask her about it. Other than than that, I'm really well.
Take care.
No comments:
Post a Comment